Published By:The New York Times
Dying Is No Reason to Stop Fighting
Ady Barkan rolled into Washington this week in a motorized wheelchair, unable to talk or to chew food or to lift his arm to scratch an itch, but determined to deliver the message that health care is a human right. Just 35 years old, he is dying of amyotrophic lateral sclerosis, also known as A.L.S. or Lou Gehrig’s disease. He has become a hero to many because of the way he is living his final years and months and days. His body is giving up; he will not.